In the past and after my diagnosis of MS, I had total trust in my medical team and the grandiose idea that my disease was on the top of their to do list. I followed every suggestion and took every medication without a second thought. Even if something didn’t work I still relied on their advice. 

Reality check!

The medical profession is full of to busy doctors, nurses that are taken for granted and assistants that are relied on to heavily to know or find out every detail of my medical history. The internet has made a huge difference in the quality and timing of keeping track of my information. But these professionals are just as human as myself and it wasn’t long before I had to take my health outcomes into my own hands.

Recently I called in a refill for oral Baclofen. I keep a supply on hand in case of an emergency and use a small amount before bed to help with spasticity. This is in addition to the Baclofen pump that supplies me with a measured amount 24/7.

After several days I was notified that the script could not be filled without a referral from my PA because the previous one didn’t show the specific amount to be filled. I notified my Doctors office through the website I use for communication. Days went by again with no response. I contacted the pharmacy again and was told that they had reached out four times with no call back. At this time I was losing my patience. I wrote back to the office, explained the situation again and told them how unacceptable it was. The next day the prescription was filled without any response from my doctors office. I guess I made my point.

I can’t stress enough to be your own advocate, read and study everything you can about your health situation and never take for granted that an overwhelmed medical symptom has your back.